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Spina bifida and other neural tube defects are among the most common serious birth defects in the Philippines. A large proportion of these cases are preventable — through adequate folic acid intake before and during early pregnancy. This article explains what neural tube defects are, why folic acid matters, what the current situation looks like in the Philippines, and what you can do. What Are Neural Tube Defects? Neural tube defects occur when the neural tube — the structure

Receiving a diagnosis of spina bifida — whether before birth, at delivery, or in the months that follow — changes everything. The medical questions come fast, and the emotional weight can feel enormous. For families in the Philippines navigating this reality, one of the most important things to know early is this: you are not alone, and there are people and organizations here who understand what you are going through. What Is Spina Bifida? Spina bifida is a neural tube defect

Living with spina bifida in the Philippines presents a unique set of challenges — medical, practical, and social. But it also means being part of a community of individuals and families who have been navigating the same terrain for decades, supporting each other through the hard days and celebrating the milestones that matter. What Living with Spina Bifida Actually Involves Spina bifida is a spectrum condition. No two people's experience is exactly the same, and outcomes vary

The Foundation of a Healthy Pregnancy Celebrating Nutrition Month reminds us of the vital role that nutrition plays, not just for ourselves, but for the next generation we nurture. It all begins with the mother, whose health directly impacts her pregnancy and her baby’s future. Let's explore how a healthy mommy leads to a healthy pregnancy. Healthy Eating for Expectant Mothers Balanced Diet: Incorporate a mix of fruits, vegetables, whole grains, lean proteins, and healthy fat

Spina bifida is a condition that affects many individuals and families. It requires ongoing care and support. Awareness efforts play a crucial role in improving the lives of those affected. These efforts help educate the public, reduce stigma, and promote early diagnosis and treatment. They also encourage community support and government action. I will explain how these awareness efforts make a difference and what more can be done. The Role of Spina Bifida Awareness Efforts i

Living with Spina Bifida involves unique experiences, challenges, and triumphs that can be hard to convey to those who haven't experienced it. This is why the Spina Bifida Adult Group Meeting was established. It is to provide a safe and welcoming environment where adults with Spina Bifida can connect and remind each other that no one has to face life's journey alone. The meeting transformed into a heartfelt event for sharing, understanding, and support, rather than just a sim

The advocacy for Mandatory Folic Acid Fortification in the Philippines continues to gain momentum through the growing support of the Department of Health (DOH), healthcare professionals, advocates, and public health stakeholders united in the mission to prevent Neural Tube Defects (NTDs) and promote healthier beginnings for Filipino children. In November 2025, members of the Spina Bifida Support Group Foundation, Inc., through the Folic Acid for All PH campaign, were given th

On August 25, 2025, fourteen young individuals with Spina Bifida, along with their families, gathered at Daily Habit Café on Aurora Blvd., Quezon City for the 2nd Spina Bifida Youth Assembly, themed “We Form, We Heal, We Rise.” Beyond being just a gathering, the event provided a heartfelt space where youth and families shared stories, built friendships, explored new interests, and found solace in knowing they are not alone in their journey. The highlight of the assembly was

Some events leave smiles. Others leave memories. But for many families who attended the 1st Spina Bifida Kids Assembly Nationwide, it left something far deeper — the feeling of finally being seen, understood, and no longer alone. One parent, Tabitha Ylarde, shared a deeply moving testimony after attending the assembly with her daughter, Raya. Her words reflected the quiet struggles carried by so many families raising children with spina bifida. The struggles often hidden behi

Our folic acid fortification advocacy in the Philippines began with a shared vision of preventing Neural Tube Defects, including Spina Bifida, and ensuring healthier futures for Filipino children and families. What started as conversations among families, health professionals, advocates, and persons with Spina Bifida slowly grew into a nationwide movement grounded in awareness, prevention, and collective action. Through the years, we recognized that many families continue to

On October 25, 2025, numerous individuals and families from various parts of Luzon gathered at SM City Marikina to commemorate World Spina Bifida and Hydrocephalus Day 2025 under the global theme, “Acceleration Action for Spina Bifida and Hydrocephalus.” This event evolved into more than just a celebration, it became a heartfelt gathering of hope, courage, advocacy, and unity for the entire Spina Bifida and Hydrocephalus community. As participants arrived at the venue, the at

On July 21, 2024, a momentous occasion unfolded as the inaugural Spina Bifida Philippines Youth Assembly convened. This groundbreaking event was a testament to the resilience and determination of a remarkable group of young individuals. Coming from different regions across Luzon, they were all united by a common bond – Spina Bifida. The assembly marked a historic milestone for the Spina Bifida community in the Philippines. For the first time, young people affected by Spina

Living with spina bifida presents unique challenges. Finding the right support can make a significant difference. Support groups offer a place to share experiences, gain knowledge, and connect with others facing similar situations. This post guides you on how to find and benefit from spina bifida support networks in the Philippines. Understanding spina bifida support networks Spina bifida support networks are communities that provide emotional, informational, and practical as

Spina bifida remains a significant health concern in the Philippines. As of 2026, many families continue to face challenges related to this condition. Understanding spina bifida, its impact, and the available support can help improve the lives of those affected. Understanding Spina Bifida and Its Impact in the Philippines Spina bifida is a birth defect where the spine and spinal cord do not form properly. This can lead to physical disabilities and other health issues. In th

Last month, the 30th International Conference on Spina Bifida and Hydrocephalus took place in Kuala Lumpur, Malaysia, bringing together...

In a remarkable effort to promote public health and well-being in the Philippines, the Food Fortification Initiative (FFI) has forged a partnership with the Spina Bifida Support Group Foundation Philippines. Together, these organizations are championing the cause of folic acid food fortification, aiming to make a significant impact on the health of the Filipino population. Scientific Background: Unveiling the Power of Folic Acid Folic acid, also known as vitamin B9, plays a c

In today's fast-paced world, it's easy to overlook the small things that can have a huge impact on our health. One such essential nutrient that often goes unnoticed is folic acid. You might have heard about the importance of folic acid during pregnancy, but its benefits extend far beyond that. Have you ever wondered why folic acid fortification in our foods is crucial for our overall well-being? Let's delve into the world of folic acid and understand why it deserves a prime s

Spina bifida remains one of the most challenging congenital conditions affecting thousands of children worldwide. Recent years have seen significant progress in how this condition is treated, offering new hope for improved quality of life. The year 2026 brings fresh updates on medical breakthroughs that could change the future for individuals living with spina bifida. This article explores the latest advances, highlighting promising treatments and technologies that are reshap

In the world of healthcare, a key element often overlooked but crucial in promoting well-being is the awareness of essential nutrients....

The journey through life presents unique challenges for individuals with Spina Bifida, a congenital condition affecting the spinal cord's...